It's been a while, I know but so much is going on and it never seems to give me a break. To make matters worse I have some serious writers block and that makes writing VERY difficult. Lately doing anything outside of typical routine is torture. I am not sleeping well, have zero appetite and am at a complete loss of words. What started as "Autism" has hurdled into huge medical problems and some of which they can not fix. I just want my baby to be ok. I want the damn doctors to get their heads out of their asses and figure out how to help him. I can't stand seeing him deteriorate in front of me. His color is changing and most days he is quite pale. In the picture below he was sleeping under his blankets(face and all) so his cheeks are flushed but the color around his eyes is what his complexion has been. Isn't that a little scary? Doc says his neurological functions are not good but can't determine what is causing it and wants the muscle biopsy done asap. I AM SCARED!!!!